“Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived—they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness.”
What people are saying:
“…Wise, generous, and a terrific storyteller.” Publisher’s Weekly
“Order this gem pronto.” Library Journal, starred review
“A wise and valuable addition to the literature on chronic illness, illuminating with verve and wit the particular struggles faced by young adults. Ms. Edwards is a delightful and seasoned guide. She knows what the issues are, how to decipher them, and how to live a rich life while shuttling between hospitals and high heels.”—Dorothy Wall, author of Encounters with the Invisible: Unseen Illness, Controversy, and Chronic Fatigue Syndrome
“Laurie Edwards is a generous writer who describes with grace and clarity how she has learned to live with multiple chronic conditions. This book is a gift to young people who are navigating chronic illness, school, and their new adulthood all at once.”—Jessie Gruman, author of AfterShock: What to Do When the Doctor Gives You—Or Someone You Love—a Devastating Diagnosis
“Laurie Edwards is a life-enhancing writer. If you’re a person with chronic illness, you should always keep this wonderful book handy.”—Sarah M. Whitman, M.D., psychiatrist specializing in chronic pain management (www.howtocopewith pain.org.)
“Laurie Edwards has written a moving and meaningful description of the issues that people face when they live with unpredictable and debilitating disease. Her words reminded me of my own struggles—and her laughter helped me remember the good times, too.”—Rosalind Joffe, author of Women, Work, and Autoimmune Disease: Keep Working, Girlfriend! and president of Chronic Illness Coach
“Both a practical and a philosophical guide for those navigating this heretofore uncharted territory.”—Lynn Royster, J.D., Ph.D., director of The Chronic Illness Initiative at The School for New Learning at DePaul University
“Life Disrupted is moving and often humorous, as Laurie Edwards informs readers about how they can navigate successfully through the medical storms, live well, and maintain fulfilling relationships.”—Douglas Whynott, author of Giant Bluefin and A Country Practice
“The time for patient empowerment has come and Laurie Edwards’ voice is leading the way. As a fellow lifelong patient, I appreciate her honesty in disclosing private patient moments which reflect the often unspoken truth of living with chronic illness.”—Tiffany Christensen, author of Sick Girl Speaks!: Lessons and Ponderings Along the Road to Acceptance (www.sickgirlspeaks.com)
Radio and Print – Interviews/Publicity
- “She’s the Carrie Bradshaw of Chronic Illness,” Boston Globe Profile
- Metro West Daily News Profile
- Psychjourney Podcast with Deborah Harper
- Health Now Internet Radio Show with Judy Foreman–Guest Expert, June 25, 2008
- 107.1 FM Get Real Girls Interview
- Medscape Interview, September 2008
- Medscape Interview, July 2007
- Library Journal Q&A
- Interview on Vernacular, Emerson’s MFA Publishing Blog
Industry Reviews
Reviews Around the Internet
- Diabetesmine.com
- CeliacChicks
- Working with Chronic Illness
- Tales of My Thirties
- I’d Like to Buy a Bowel
- Never That Easy
- Migraine Chick
- Managing the Sweetness Within
- More Than a Minivan Mom
- But You Don’t Look Sick
- How to Cope with Pain
- Getting Closer to Myself
- Sick Momma
- Blogborygmi
- Life with Mastocytosis
- My Chronic Life
- HealthCentral’s Allergy Network
- Getting Better with Dr. Val